Man's way leads to a hopeless end -- God's way leads to an endless hope. "To love is not to look at one another, But to look together in the same direction". Antoine de Saint-Exupery "My soul, wait in silence for God only, For my hope is from Him. He only is my rock and my salvation, My stronghold; I shall not be shaken. On God my salvation and my glory rest; The rock of my strength, my refuge is in God Trust Him at all times, O peoplePour out your heart before Him; God is a refuge for us. Psalms 62:5-8 NAS Courage is to feel the daily daggers of relentless steel and keep on living --Douglas Malloch Some say the glass is half empty, some say the glass is half full, I say, are you going to drink that? --Lisa Claymen

 A good sense of humor is essential for dealing with all the negative stress and anxiety producing hassles and obstacles involved in life. I don't go a day without finding something to laugh about including myself. The Internet is a never ending source of laughter. Sending cards is my favorite but rental movies and books are other ways to bring laughter to patients and as a patient return the "gift" to your caregiver. They need help through this too.

I find comfort in varieties of art, music, sights and sounds of nature. I stay focused on what I can do rather than what I can not do. I use an On Screen Keyboard that came with my computer, using the hover feature. I write letters to my grandsons who are to young to remember me. I make silly little Flash movies for them and record their voices.

I have a pet bird named Crackers. She's a Red Tail African Grey. We are NASCAR fans and my driver is Dale Jarrett so I'm teaching her to say "Dale! drive the big brown truck!"

Life with ALS is a pervasive feeling of demoralization. I hope you find comfort in your life with new understanding that love never dies, never disappears but exists complete and unbroken forever.

Debbie Tope
dx-95 limb onset

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