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Links

• ALS Organizations
• ALS registries
• Assistive Technology
• Blogs
• Chat rooms
• Government
• International ALS Societies
• Mail-Lists
• Medical-Scientific
• PALS personal web sites
• Support Group

ALS Organizations

• ALS Association/USA (ALSA)
• ALS Independence (Canada)
• ALS March of Faces
• ALS Society of Canada
• ALS Therapy Development Institute (ALSTDI)
• Hope For ALS
• Les Turner ALS Foundation
• March of Faces
• Muscular Dystrophy Association (ALS/MDA)
• National Organization for Rare Disorders NORD Website
• Project A.L.S
• Robert Packard Center for ALS Research
• World Federation of Neurology ALS

ALS registries

• ALSconnection http://www.alsconnection.com Among the few existing databases is the new ALS Connections registry funded by MDA and run by Robert Miller through the Forbes Norris MDA/ALS Research Center in San Francisco. It’s the online version of the paper-based
ALS C.A.R.E. registry.

• PatientsLikeMe http://www.patientslikeme.com

Assistive Technology

• Abledata is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States.

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Blogs

• Steve White: http://www.myspace.com/steveayse
  http://swhitegeo.spaces.live.com/
• Robert A Coutts: http://robertmnd.blogspot.com

Chat rooms

• THE ALS CHAT PAGE A feature of the MDA (Muscular Dystrophy Association).

Government Agencies

• Center for Disease Control and Prevention
• Clinical Trials
• Family and Medical Leave Act
• FDA Consumer Drug Information
• healthfinder
• House of Representatives Home Page
• Medicare
• National Institute of Neurological Disorders & Stroke
• National Library of Medicine
• Senators of the 110th Congress
• Social Security Disability Secrets
• Social Security Office of Disability
• U.S. Food and Drug Administration (FDA)

Support Groups

ALS FORUMS.COM ALS Chat and ALS Help at the ALS/MND Support Group Forum. An on line support group for all persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALS forums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.

"Living With ALS" Yahoo Group. For people living with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship.

NORD has partnered with ClinicaHealth to create a free, unique online community service for rare-disease patients, their families, and caregivers. It will be a place where people can find and support one another, share stories, and build a network of online friends. Visit the community. 

PatientsLikeMe "Find patients just like you.  Learn from others who know. " Free to join.

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