Links

• ALS Organizations
• ALS registries
• Assistive Technology
• Blogs
• Chat rooms
• Government
• International ALS Societies
• Mail-Lists
• Medical-Scientific
• PALS personal web sites
• Support Group

Family Restrooms

• www.americanrestroom.org/family/index.htm
• www.findfamilyrestrooms.com

• ALS Care Project
• ALS Association/USA (ALSA)
• ALS Family Support Group of Ohio, Inc.
• ALS Hope Foundation
• ALS Matters
• ALS Therapy Development Institute (ALSTDI)
• Les Turner ALS Foundation
• March of Faces
• Muscular Dystrophy Association (ALS/MDA)
• National Organization for Rare Disorders (NORD) Website
• Project A.L.S
• Ride for Life
• Robert Packard Center for ALS Research
• World Federation of Neurology ALS

• ALS connection http://www.alsconnection.com Among the few existing databases is the new ALS Connections registry funded by MDA and run by Robert Miller through the Forbes Norris MDA/ALS Research Center in San Francisco. It’s the online version of the paper-based ALS C.A.R.E. registry.

• PatientsLikeMe http://www.patientslikeme.com/registry "This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you are a PALS, you can add your name by signing up for a PatientsLikeMe account and filling out your profile."

• Abledata is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States.

Top

• Steve White: http://www.myspace.com/steveayse
  http://swhitegeo.spaces.live.com/
• Robert A Coutts: http://robertmnd.blogspot.com

• THE ALS CHAT PAGE A feature of the MDA (Muscular Dystrophy Association).

• Center for Disease Control and Prevention
• Clinical Trials
• Family and Medical Leave Act
• FDA Consumer Drug Information
• healthfinder
• House of Representatives Home Page
• Medicare
• National Institute of Neurological Disorders & Stroke
• National Library of Medicine
• Senators of the 111th Congress
• Social Security Disability Secrets
• Social Security Office of Disability
• U.S. Food and Drug Administration (FDA)

ALS FORUMS.COM An on line support group for all persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALS forums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.

"Living With ALS" Yahoo Group. For people living with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship.

NORD has partnered with ClinicaHealth to create a free, unique online community service for rare-disease patients, their families, and caregivers. It will be a place where people can find and support one another, share stories, and build a network of online friends. Visit the community. 

PatientsLikeMe "Find patients just like you.  Learn from others who know. " Free to join.

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