Amyotrophic Lateral Sclerosis
ALS is also known as motor neuron disease (MND) or Lou Gehrig's disease named after the famous baseball player who died in 1941. To learn more about ALS, you may wish to start with the What is ALS? or FAQ pages.
Focus on ALS was created to help raise awareness about the disease This site was and continues to be dedicated to people whose lives have been jolted by a deviously elusive disease that can mummify the most vivacious body while leaving you in complete consciousness. A disease that will challenge your courage, test your faith, your love and your will to fight for your life and your right to stay in control of your comfort and care.
I am not a Doctor, Nurse or a Med Student. I am a mother, a wife, a sister, a grandmother, a stepmother. I am a Person with ALS (PALS) searching, hoping, praying, learning and trying to understand what is slowly stealing my strength since my official diagnosis in 1995.
My name is Debbie Tope. I live in Baltimore, Ohio and have been living with ALS for 13 years. I was officially diagnosed in September of 1995 but I started showing symptoms in late 1993. If you would like to read a more detailed history of my life with ALS, you can read My Story or you can read a "blog" of my thoughts and my daily life with ALS, which I call Moments with Debbie.
Do you have a question or just need to say something? There are now three ways to do that. I invite everyone to sign the Focus on ALS Guest book. I would love to hear from you. Do you have an event or web-site or some news to tell about? Then put a posting on the Focus on ALS Bulletin Board. If you have a question or comment just for me, you can always send me an E-mail.
Thank you for taking the time to visit my site.
Debbie Tope
"I will not surrender my faith, my hope, my love, my courage or my laughter
to this vicious disease."
My battles and blessings with ALS Blog
Please take the time to sign the guest book. I would
love to hear from you.
Thank you!!
Do you want to tell the ALS community about an upcoming event, have something to sell or want to buy, found a great link, or just want to share something? This is the place!
If you have any suggestions, questions or comments regarding this website:
~Best viewed with a positive attitude~
Disclaimer | Privacy Statement | E-mail
Page updated: 05/06/2008 12:37 AM
