References to Help Cope
Beyond Rage: Mastering Unavoidable Health Changes -
By JoAnn LeMaistre, Ph.D.
Alpine Guild, P.O. Box 4846, Dillon, CO 80435; (800) 869-9559
$24.95 plus $2.50 shipping and handling
ISBN 0931712114
Help Yourself -
By Douglas R. Buey
MacMillan Publishing, 1633 Broadway, New York, NY 10019-6785; (212) 654-8500
$14.95 (paperback) plus shipping and handling; ISBN 0028610598
How Will They Know if I'm Dead? - By Robert C. Horn, III
GR/St. Lucie Press, 100 East Lincoln Blvd., Suite 403B, Delray Beach, FL 33483
(561) 274-9906; $12.95 (paperback) plus $4.95 shipping and handling
ISBN 157440713
In Sunshine And In Shadow - Edited by Judy Oliver
(Out of Print) Available for loan through the ALS Association:
21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364; (818) 340-7500 or
(800) 782-4747; $3.00 shipping and handling
It Helps to Talk About It: Living, Not Dying, with Lou Gehrig's Disease
- By Bob MacLean; The ALS Association, 21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364; (800)
782-4747; $18.00 (oversize paper).
Living Well with Chronic Illness - By Gayle Heiss
Gayle Heiss, P.O. Box 210, Mendocino, CA 95460
$2.00 plus $0.60 shipping and handling
Meeting the Challenge: Living with Chronic Illness - By Audrey Kron
7466 Pebble Lane, West Bloomfield, MI 48322
$16.00* plus $3.00 shipping and handling. *$2.00 of each book sale is donated to ALSA
Realities in Coping with Progressive Neuromuscular Disease
Edited by Claire F. Leach, Leon I. Charash, Robert E. Lovelace, Stewart G. Wolf, Austin H. Kutscher,
David Price Roye
The Charles Press, P.O. Box 15715, Philadelphia, PA 19103; (215) 545-8933
$34.95 plus $5.50 (first copy), $2.00 (each additional copy) for shipping and handling.
We Are Not Alone: Learning to Live with Chronic Illness -
By Sefra Korbin Pitzele
Workman Publishing, 708 Broadway, New York, NY 10013; (212) 354-5900
$10.95 plus $3.00 shipping and handling
ISBN 08948801392
Communication and Swallowing Solutions for the ALS/MND Community
- By Marta S. Kazandjian
CINI, 250 Mercer St., Suite B1608, New York, NY 10012; (516) 874-8354
$7.95 (paperback) plus $1.50 shipping and handling
ISBN 1565938089
Non-Chew Cookbook - By J. Randy Wilson
Wilson Publishing, Inc., P.O. Box 2190, Glenwood Springs, CO 81602-2190
(800) 843-2409
$23.95 (1 to 9 books); $16.77 (10 or more books - 30% discount). Postage paid.
Pot Holders and Love Handles - By Lynda Cabela
Cabela's Furniture Store, 602 Second St., Cappell, NE 69129
$5.00 plus $1.25 shipping and handling
Caregiver Resources
Family Caregiver's Guide - By Joan Ellen Foyder
The Futuro Company, 5801 Mariemont Ave., Cincinnati, OH 45227
(513) 271-3782; $14.95 per copy, plus $2.50 shipping and handling.
Caring and Coping When a Loved One is Seriously Ill - By Earl A. Grollman
Beacon Press Order Dept., 25 Beacon St., Boston, MA 02108; (800) 706-2220
$10.00 (paperback) plus shipping and handling
Share the Care - By Cappy Caposella and Sheila Warnock
Simon and Schuster, Fireside, 1230 Avenue of the Americas, New York, NY 10020
$13.00 (paperback); ISBN 0684811367
Home Health Care
Home Health Care - By JoAnn Friedman
W.W. Norton & Co. Ltd., 550 Fifth Ave., New York, NY 10010
$22.50 plus postage
Other Suggested Readings
Avoiding the Medicaid Trap: How Every American Can Beat the Catastrophic Costs of Health Care
- By Armond D. Budish
Avon Books, 1350 Avenue of the Americas, New York, NY 10019
(800) 238-0658
$15.00 (paperback) plus shipping and handling
ISBN 0380727714
Handbook of Living Wills (free living will available) Choice in Dying, Inc., 200 Varick St., New York, NY 10014; (800) 989-9455
References: video tapes
What is ALS?
The ALS Association, 21021 Ventura Blvd., #321, Woodland Hills, CA 91364
(818) 340-7500 or (800) 782-4747
Purchase: $15 (includes shipping and handling)
Loan for 2 weeks: $5.00 (shipping and handling)
- An educational video presenting information about ALS.
Reason for Hope
The ALS Association, 21021 Ventura Blvd., #321, Woodland Hills, CA 91364
(818) 340-7500 or (800) 782-4747
Purchase: $19.95 (includes shipping and handling)
Loan for 2 weeks: $5.00 (shipping and handling)
- An educational video about ALS and the ALS Association for someone new to ALS.
It's Your Choice
Valona Productions, 5105 E. Los Angeles Ave., # E-178, Simi Valley, CA 93063
(805) 527-8557 for messages or home: (805) 527-9366
$19.95 (includes shipping and handling)
- An educational video presenting information to people who need to make an informed decision about
whether to use a ventilator.
Ventilation: The Decision Making Process - By the Les Turner ALS Foundation.
The ALS Association, 21021 Ventura Blvd., #321, Woodland Hills, CA 91364
(818) 340-7500 or (800) 782-4747; Loan for 2 weeks: $5.00 (shipping and handling)
- An educational video about ALS and the ALS Association for someone new to ALS.
Caring for the Caregiver - By Ismail and Cheryl Tsieprati
Valona Productions, 5105 E. Los Angeles Ave., # E-178, Simi Valley, CA 93063
(805) 527-8557 for messages or home: (805) 527-9366
$19.95 (includes shipping and handling)
- An educational video that explores ways caregivers can take better care of themselves, reduce stress,
make life easier and more enjoyable, and find help when it's needed.
The Cutting Edge Medical Report - Discovery Channel, June, 1996
The ALS Association, 21021 Ventura Blvd., #321, Woodland Hills, CA 91364
(818) 340-7500 or (800) 782-4747
Loan for 2 weeks: $5.00 (shipping and handling)
- An educational video about ALS including a visit to an ALSA Center geared to healthcare professionals.