National Organization for Rare Disorders (NORD)
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This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see NORD
Amyotrophic Lateral Sclerosis
Synonyms of Amyotrophic Lateral Sclerosis
- ALS
- Amyotrophic Lateral Sclerosis-Polyglucosan Bodies
- Aran-Duchenne Muscular Atrophy
- Gehrig's Disease
- Lou Gehrig's Disease
- Motor System Disease (Focal and Slow)
- Benign Focal Amyotrophy of ALS
- Infantile Spinal Muscular Atrophy, ALS
- Juvenile Spinal Muscular Atrophy, Included
- Kugelberg-Welander Disease
- Primary Lateral Sclerosis
- Progressive Bulbar Palsy, Included
- Spinal Muscular Atrophy, Type ALS
- Upper Motor Neuron Disease
- Werdnig-Hoffman Disease
- Wohlfart-Disease
General Discussion
Amyotrophic Lateral Sclerosis (ALS) is a disease that causes progressive
degeneration and eventual loss of function of both upper and lower motor
neurons resulting in progressive skeletal muscular wasting and weakness.
There are a number of different forms of Amyotrophic Lateral Sclerosis and other motor neuron diseases with similar symptoms. These include: Slow Motor Neuron Disease, Focal Motor Neuron Disease, Spinal Muscular Atrophy (Kugelberg-Welander Disease and Juvenile Spinal Muscular Atrophy), Progressive Bulbar Palsy, Benign Focal Amyotrophy, Primary Lateral Sclerosis, Infantile Spinal Muscular Atrophy (Werdnig-Hoffmann Disease), Wohlfart- Kugelberg-Welander Disease, and Floppy Infant Syndrome.
Organizations related to Amyotrophic Lateral Sclerosis
- Amyotrophic Lateral Sclerosis Association
27001 Agoura Road
Calabasas Hills CA 91301-5104
Phone #: 818-880-9007
800 #: 800-782-4747
e-mail: MARY@ALSA-NATIONAL.ORG
Home page: http://www.alsa.org
- Amyotrophic Lateral Sclerosis Society of Canada
265 Yorkland Blvd
Ontario Intl M2J 1S5
Phone #: 416--49-7-2267
800 #: 800-267-4257
e-mail: alscanada@als.ca
Home page: http://www.als.ca
- Families of Spinal Muscular Atrophy
P.O. Box 196
Libertyville IL 60048
Phone #: 847-367-7620
800 #: 800-886-1762
e-mail: sma@interaccess.com
Home page: http://www.fsma.org
- Hairy Cell Leukemia Research Foundation
209 Park Road
Chelmsford MA 01824
Phone #: 978-256-2673
800 #: --
e-mail: info@sp-foundation.org
Home page: www.sp-foundation.org
- International Alliance of ALS/MND Associations
Northampton None NN1 2PR
Phone #: N/A
800 #: --
e-mail: N/A
Home page: http://www.alsmndalliance.org/
- Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd.
8142 Lawndale Avenue
Skokie IL 60076
Phone #: 847-679-3311
800 #: 888-257-1107
e-mail: info@lesturnerals.org
Home page: http://www.lesturnerals.org
- Muscular Dystrophy Association
3300 E. Sunrise Dr
Tucson AZ 85718
Phone #: 520-529-2000
800 #: 800-572-1717
e-mail: mda@mdausa.org
Home page: http://www.mdausa.org
- NIH/NINDS Brain Resources and Information Network
PO Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: N/A
Home page: http://www.ninds.nih.gov/
- Scottish Motor Neurone Disease Association
76 Firhill Rd
Glasgow Intl G20 7BA
Phone #: 014-194-51077
800 #: N/A
e-mail: info@scotmnd.sol.co.uk
Home page: http://www.scotmnd.org.uk
- Stem Cell Research Foundation
22512 Gateway Center Drive
Clarksburg MD 20871
Phone #: 301-258-9495
800 #: N/A
e-mail: info@stemcellresearchfoundation.org
Home page: http://www.stemcellresearchfoundation.org