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05/08/2007: "Longevity Part 2"

I believe that part of the reason I have outlived the average ALS lifespan is nutrition. You have probably heard a hundred times how important proper nutrition is and in ALS it is no exception. Muscles need fuel or they quit working. Earlier this year since I was putting on a little extra weight, I decided to cut back on my food intake-BIG MISTAKE-My body has not recovered from that yet and the muscles I lost from my "diet" will probably never return. Every time that I don't eat right, my body really suffers. It was recommended to me and I agree that an ALS patient should get a feeding tube put in early in the disease (before you need it). I did and it has helped me very much and the decision to get the peg tube is one I have not regretted. If I don't feel like eating or get tired of eating, I can still get my full meal through the tube. Plus I don't have to worry about choking down the numerous medications and supplements I take. They all go through the tube (I will talk about my specific medications and supplements next time). I still eat some food by mouth and enjoy eating but I am not under pressure to get all my nutrition in that way. I use a product called Jevity which seems to be well balanced and is made especially for feeding tubes.

So my recommendation is to get a feeding tube and get it before you need it and to continue to eat a good balanced diet. A nutritionist working along with your ALS doctor would be beneficial.

Eat well, stay strong! __Debbie